I have to be patient

I guess I have to be patient to get my diagnosis Tonight, I think I figured out   What happened to me and how My cortisol went from normal to low.   When I got prescribed medications for my thyroid I might have taken an extra dose one day and I became very nauseous and…

Some kind of tumor

Do I know for sure it is Cushings Disease No, I don’t Maybe I convinced myself it was based on my symptoms And I didnt think it was Acromegaly I am pretty sure there is a tumor in or near My pituitary gland that has caused   -excess weight gain -At times tiredness and weakness…

okay, now will you diagnose me

Honestly, Today I was so tired. After I woke up , I was so tired all day my muscles are feeling weak and even my coffee cup is feeling heavy Considering Im built like a tank my coffee cup should not be heavy My last cortisol test showed 78 nmol I know that is low,…

doctor’s visit

okay, I’m super tired so let’s start. The nurse practitionner referred me to the endo today. I just need someone to read my results properly   Pleaaase…

diabetes insipidus and I’m sooooo…. thirsty- Seinfeld reference

Is it that episode where Elaine has ‘turned’ into George   or that one where George is so thirsty. Yes, I spend my days researching medical research and going to the doctor (s) but having an invisible illness   like a pituitary tumor is difficult. The first endo said I am probably looking for an…

tsh oma again

okay , at this point I’m rambling before I started losing my tsh quite rapidly I had a high tsh Is it possible I have a tsh oma? These are generally are associated with weight loss and I have only gained weight so maybe it was just hypothyroidism

Do I have to travel?

So. okay, Im not exactly sure what the nurse is going to tell me Have they figured it out yet, I’-m not sure. All I know is I didn’t do the ACTH stim test.   If you knew me, you would kniw I probably spend countless hours researching health subjects and yout right doctors probably…

Canada and lack of pituitary centers of excellence

What I’ve learned is, that there are several hospitals in the United States which have endocrinology department that specialize in pituitary and hypothalamic disorders and yet in Canada or at least where I live. the possibility of having a pituitary tumor that mucks up your system is an abstract concept. yes I get it, it…

Why won’t anyone listen

I’m pretty confidant I have secondary adrenal insuffiency I have low cortisol, twice And my ACTH results don’t look very high Which would probably exclude Addison’s By probably, I mean it does.   So if the cause is in the pituitary or hypothalamus Why doesn’t a doctor order some sort of scan   For some…

Still no diagnosis

I have learned a few things from getting many blood tests done. Instead of high cortisol, I have low cortisol.   So what does that mean? Normally low cortisol mean either two types of hypopituitarism The first being Addison’s disease The second being secondary adrenal insufficiency.   The second thing to determine is which type…